• ADA (Americans with Disabilities Act) :: http://www.ada.gov/ :: The ADA Home Page provides access to ADA regulations for businesses and State and local governments, technical assistance materials, ADA Standards for Accessible Design, and links to Federal agencies with ADA responsibilities.
• Alabama Adult Siblings Investing in our Brothers and Sisters support group (AL-ASIBS) :: http://www.thearcofshelby.org/pages/?pageID=66 :: Information and networking group for adult siblings of people with disabilities. AL-ASIBS understands that being an adult sibling of a brother or a sister with a disability has its rewards and challenges.
• Alabama Arise :: http://www.alarise.org/ :: Arise is a Coalition of religious, community, and civic groups that promote state policies, including tax reform, to improve the lives of low-income people.
• Alabama Asthma Plan by the Alabama Asthma Coalition :: http://www.adph.org/steps/assets/ALAsthmaStatePlan2009.pdf :: Approximately 1 in 10 Alabamians currently has asthma. The rates of asthma are on the rise in Alabama, and the state’s current and lifetime rates for asthma are now greater than those of the United States as a whole.
• Alabama Autism Society :: http://www.autism-alabama.org/ :: This organization's mission is to improve services for individuals affected by Autism Spectrum Disorder in the State of Alabama through education and advocacy.
• Alabama Council for Developmental Disabilities :: http://www.acdd.org/ :: The Alabama Council for Developmental Disabilities is dedicated to improving the lives of those with developmental disabilities through advocacy, capacity building and systems change.
• Alabama Department of Insurance :: http://www.aldoi.gov/ :: Serves the people of Alabama by regulating the insurance industry, providing consumer protection, providing market stability, and enforcing fire safety standards and laws.
• Alabama Department of Mental Health :: http://www.mh.alabama.gov/ :: The Alabama Department of Mental Health ADMH is the state agency responsible for serving Alabama citizens with mental illnesses, intellectual disabilities, and substance use disorders.
• Alabama Department of Rehabilitation Services (ADRS) :: http://www.rehab.alabama.gov/home :: We are a state agency that is unique in the nation for providing services to children and adults with disabilities through a seamless system of service delivery.
• Alabama Department of Special Education :: http://www.alsde.edu/html/home.asp ::
• Alabama Disabilities Advocacy Program :: http://www.adap.net/ :: ADAP is part of the federally mandated protection and advocacy system. ADAP's mission is to provide quality, legally based advocacy services to Alabamians with disabilities in order to protect, promote and expand their rights.
• Alabama Family Trust :: http://www.alabamafamilytrust.com/ :: Alabama Family Trust is a non-profit, 501(c) 3, pooled trust company administering special needs trusts for the disabled throughout the United States.
• Alabama Head Injury Foundation :: http://www.ahif.org/ :: The Alabama Head Injury Foundation mission is to improve the quality of life for people who have survived traumatic brain injuries and for their families.
• Alabama Health Insurance Reform Information Center :: http://www.aldoi.gov/Consumers/HealthInsReform.aspx :: The Health Insurance Reform Information Center contains links, updates and other helpful information on health insurance reform and its effect on Alabama. This is where stakeholders can find current information on meetings and other information regarding
• Alabama Institute for Deaf and Blind (AIDB) :: http://www.aidb.org/ ::
• Alabama Lifespan Respite Resource Network :: http://alabamarespite.org/ :: If you are the caregiver of a child or adult with a disability or chronic illness, chances are you need a break. Temporary Relief for Caregivers. This network can help you find respite providers! Call 1-866-1-866-RESTALA.
• Alabama Medicaid :: http://medicaid.state.al.us/ :: Medicaid is a state/federal program that pays for medical and long-term care services for low-income pregnant women, children, certain people on Medicare, disabled individuals and nursing home residents.
• Alabama Parent Training Information APEC (PTI) :: http://www.alabamaparentcenter.com/ALPTI/ ::
• Alabama Rett Connect :: http://www.alabamarettconnect.org/index.html :: The goal of this project is to locate, and bring together, Rett Syndrome families for the purpose of informing them on the available support services throughout the state. We will also develop a state-wide registry, plus build and maintain support network
• Alabama STAR: Statewide Technology Access and Response System for Alabamians with Disabilities :: http://www.rehab.state.al.us/Home/default.aspx?url=/Home/Services/VRS/STAR+System/Main :: STAR is Alabama’s Assistive Technology Act program. The mission of STAR is to increase the provision of, access to, and funding for assistive technology for Alabamians of all ages.
• Alabamians with Asthma :: http://www.aces.edu/department/family/asthma//index.php :: According to the Center for Disease Control, six percent of Alabamians have asthma, with 199,000 persons now diagnosed. In partnership with Auburn University's Harrison School of Pharmacy, the Alabama Cooperative Extension System is developing an educatio
• Alexander Graham Bell Association :: http://www.agbell.org/DesktopDefault.aspx :: The Alexander Graham Bell Association for the Deaf and Hard of Hearing helps families, health care providers and education professionals understand childhood hearing loss, and the importance of early diagnosis and intervention.
• ALL Kids :: http://adph.org/allkids/ :: ALL Kids is a low-cost, comprehensive healthcare coverage program for children under age 19. Benefits include regular check-ups and immunizations, sick child doctor visits, prescriptions, vision and dental care, hospitalization, mental health and substan
• American Academy of Pediatrics (AAP) :: http://www.aap.org/healthtopics/specialneeds.cfm :: The mission of the AAP Division of Children with Special Needs is to improve the system of care for Children with Special Health Care Needs (CSHCN) by connecting them to a medical home.
• Ask the Expert-ADHD, LD and Chronic Stress-Part 1 :: http://www.youtube.com/watch?v=t16sF7KuZtE&feature=youtu.be :: Dr. Jerome Schultz, a clinical neuropsychologist and expert on ADHD/LD, discusses the impact of chronic stress on children with attention-deficit/hyperactivity disorder and/or learning disabilities.
• Ask the Expert-ADHD, LD and Chronic Stress-Part 2 :: http://www.youtube.com/watch?v=o0IQdKXKnmI&feature=youtu.be :: In this second webinar of a 2-Part series, Dr. Jerome Schulz answers question about ADHD/LD and Chronic Stress. (NOTE: the audio begins at about 30 seconds).
• Autism Society of America :: http://www.autism-society.org/ :: Founded in 1965 by Dr. Bernard Rimland, Dr. Ruth Sullivan and many other parents of children with autism, the Autism Society is the leading source of trusted and reliable information about autism.
• Bright Futures for Families :: http://www.brightfuturesforfamilies.org/home.shtml :: Promotes and improves the health and well-being of children of all ages. Offering resources for families developed with the support of public health, non-profit, and corporate organizations.
• Building the legacy: IDEA 2004 :: http://idea.ed.gov/ ::
• Casey Life Skills :: http://www.caseylifeskills.org/pages/res/rsf%5CRSF.pdf :: A Parent’s Guide To Teaching Life Skills - The mission of Casey Family Programs is to support families, youth, and children in reaching their full potential. Casey provides an array of permanency planning, prevention, and transition services such as long
• Catalyst Center :: http://hdwg.org/catalyst/ :: The Catalyst Center is a national center dedicated to improving health care coverage and financing for Children and Youth with Special Health Care Needs (CYSHCN).
• Child and Adolescent Bipolar Foundation :: http://www.bpkids.org/ :: The Child & Adolescent Bipolar Foundation improves the lives of families raising children and teens living with bipolar disorder and related conditions.
• Children with Attention Deficit Order :: http://www.chadd.org/ ::
• Children's Rehabilitation Service :: http://www.rehab.state.al.us/Home/default.aspx?url=/Home/Services/CRS/Main :: A division of Alabama Department of Rehabilitation Services.
• Children's Rehabilitation Service ( CRS ) :: http://www.rehab.alabama.gov/individuals-and-families/childrens-rehabilitation-service :: A statewide organization of skilled professionals providing quality medical, rehabilitative, coordination and support services for children with special health care needs and their families.
• Consortium for Appropriate Dispute Resolution in Special Education (CADRE) :: http://www.directionservice.org/cadre/ ::
• Cyber Bullying :: http://www.stopcyberbullying.org/ :: Describes cyberbullying, how to prevent it and take action against it.
• Cystic Fibrosis Foundation Alabama Chapter :: http://www.cff.org/Chapters/alabama/ :: The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Cystic fibrosis is an inherited chronic disease that affects the lun
• Disability Etiquette (Easter Seals) :: http://www.easterseals.com/site/PageServer?pagename=ntl_etiquette :: People with disabilities are entitled to the same courtesies you would extend to anyone, including personal privacy. If you find it inappropriate to ask people about their sex lives, or their complexions, or their incomes, extend the courtesy to people wi
• Disability Etiquette (United Spinal Association) :: http://www.unitedspinal.org/pdf/DisabilityEtiquette.pdf :: The national organization on disability reports that more than 54 million Americans have a disability. This booklet is for anyone—with or without a disability—who wants to interact more effectively with people with disabilities.
• Disability Etiquette: ENGAGING PEOPLE WITH DISABILITIES :: http://www.tndisability.org/system/files/u1/Disability_Etiquette.pdf :: Disability Etiquette: ENGAGING PEOPLE WITH DISABILITIES - Don’t let fear and uncertainty keep you from getting to know people with disabilities.
• Emergency Medical Services for Children (EMSC) National Resource Center's (NRC) :: http://www.emscnrc.org :: EMSC NRC works to promote EMS and trauma system development at local, state, regional, and national levels to adequately prepare for the care of children.
• Epilepsy Foundation :: http://www.epilepsyfoundation.org/ ::
• Equitable Transitions to Adulthood: Issues of Cultural and Social Capital :: https://aucd.adobeconnect.com/_a1005431686/transitions_adulthood :: Cultural/social capital relevant to special education was identified incl. potential to impact positive postschool outcomes explained, and the implications for research/practice.
• Family Guidance Center of Alabama :: http://familyguidancecenter.org/index.php?story=erl.referral :: Family Guidance Center’s Child Care Resource and Referral Service (CCR&R), Child Care Solutions, works in partnership with parents, child care providers, community agencies, business leaders, and government officials to make high quality child care availa
• Family Voices (National) :: http://www.familyvoices.org :: The web site for Family Voices of Alabama's national parent organization.
• Financial Planning for Families :: http://www.alabamarespite.org/links.htm#future ::
• Governor’s Office On Disability (GOOD) :: http://www.good.state.al.us/ ::
• Health Care Transition for Youth with Special Health Care Needs An Analysis of National and State Performance :: http://www.gottransition.org/images/GT_fnl_Rpt_wlogo.pdf?utm_content=&utm_source=VerticalResponse&utm_medium=Email&utm_term=%26quot%3BA%20New%20Report%20on%20the%20Status%20of%20Health%20Care%20Transi :: Nationally, less than half of all youth with special health care needs, ages 12 through 17, successfully transition from pediatric to adult health care. This report provides new national and state information to establish a transition baseline, examine st
• Hiring & Training Respite Providers Manual :: http://www.alabamarespite.org/index.php/guides-manuals-presentations-2.html :: Hiring & Training Respite Providers Manual created by Alabama Lifespan Respite Resource Network (Alabama Respite) a project of United Cerebral Palsy of Huntsville and Tennessee Valley, Inc. (UCP).
• Hospital Tips Every Parent Should Know & Family Support :: http://www.childlife.org/Resource%20Library/ResourcesforCaregivers.cfm :: Family Support and Information and downloadable PDFs for preparing for hospital visits.
• How People Get Coverage Under the Affordable Care Act :: http://healthreform.kff.org/The-Basics/Access-to-Coverage-Flowchart.aspx :: The Affordable Care Act will expand eligibility for Medicaid and provide tax credits that make insurance more affordable for people buying coverage on their own through new health insurance Exchanges. See flow chart.
• http://www.cdc.gov/ncbddd/adhd/data.html :: CDC info on Attention-Deficit / Hyperactivity Disorder (ADHD) :: People with ADHD have trouble paying attention, controlling impulsive behaviors (might act without thinking about what the result will be), and in some cases, are overly active. Prevalence varies substantially by state, from a low of 5% in Colorado to a h
• Independent Living Resources of Greater Birmingham, Inc. :: http://www.ilrgb.org/links/20110429_emergency_links. :: The Independent Living Resources of Greater Birmingham, Inc. has compiled a list of emergency links that may help you if you have been impacted by the April 2011 tornadoes.
• Individual Family Support Service (IFS) :: http://www.famsupport.com/ :: Assistance is "whatever is necessary" within available funds, and may include information and referrals, home modifications, food, clothing, therapy, prescription drugs, utilities assistance, childcare, special holiday help, etc.
• Individuals with Disabilities Education Act 2004 :: http://idea.ed.gov/ ::
• Institute for Family-Centered Care :: http://www.familycenteredcare.org/ ::
• International Rett Syndrome Association :: http://www.rettsyndrome.org/ ::
• Kaiser Family Foundation :: http://www.kff.org/ :: Kaiser Family Foundation is a leader in health policy analysis, health journalism and communication.
• Learning Disabilities Association of Alabama (LDAA) :: http://www.ldanatl.org/ ::
• Learning Disabled Online :: http://www.ldonline.org/ ::
• Legal rights to medical records :: http://www.hpi.georgetown.edu/privacy/stateguides/al/al.pdf :: Your Medical Record Rights in Alabama: A Guide to Consumer Rights under HIPAA written by Pritts & Kudszus of Health Policy Institute Georgetown University.
• Medicare :: http://www.medicare.gov/ :: The Official U.S. Government Site for People with Medicare
• Mental Health Services Locator :: http://store.samhsa.gov/mhlocator :: Provides comprehensive information about mental health services and resources and is useful for professionals, consumers and their families, and the public.
• National Alliance for the Mentally Ill :: http://www.nami.org/ ::
• National Association of the Deaf :: http://www.nad.org/ ::
• National Ataxia Foundation :: http://www.ataxia.org/ ::
• National Center for Cultural Competence :: http://nccc.georgetown.edu/index.html :: The mission of the NCCC is to increase the capacity of health care and mental health care programs to design, implement, and evaluate culturally and linguistically competent service delivery systems to address growing diversity, persistent disparities, an
• National Center for Family/Professional Partnerships :: http://www.fv-ncfpp.org/ :: The National Center for Family/Professional Partnerships (NCFPP) provides leadership in helping families of children and youth with special health care needs / disabilities and professionals partner together in decision-making for improved care.
• National Center for Learning Disabilities :: http://www.ncld.org/ ::
• National Center for Medical Home :: http://www.medicalhomeinfo.org/ :: The National Center for Medical Home Implementation (NCMHI) is a cooperative agreement between the Maternal and Child Health Bureau (MCHB) and the American Academy of Pediatrics (AAP). The NCMHI works to ensure that all children and youth have access to a
• National Center on Secondary Education and Transition :: http://www.ncset.org/ ::
• National Council on Disability :: http://www.ncd.gov/ ::
• National Down Syndrome Society :: http://www.ndss.org/ ::
• National Family Caregivers Association :: http://www.nfcacares.org/about_nfca/ ::
• National Federation of the Blind :: http://www.nfb.org/nfb/ :: Voice of the Nation's Blind - The real problem of blindness is not the loss of eyesight. It is the misunderstanding and lack of information that exists. If a blind person has proper training and opportunity, blindness can be reduced to a physical nuisance
• National Information Center for Children and Youth with Disabilities :: http://www.nichcy.org/Pages/Home.aspx ::
• National Mental Health Association :: http://www.nmha.org/ ::
• National Organization for Rare Disorders :: http://www.nord-rdb.com/ ::
• Next Step in Care: Guides for All Caregivers :: http://nextstepincare.org/left_top_menu/Caregiver_Home/ :: The Next Step in Care website is designed to help family caregivers and health care professionals work together to make the transition from one patient care setting or level of care to another as smooth and effective as possible.
• No Child Left Behind Act (NCLB) :: http://www.ed.gov/nclb/landing.jhtml?src=pb ::
• No Child Left Behind Act (NCLB) and the Individuals with Disabilities Education Act (IDEA): :: http://cehd.umn.edu/nceo/OnlinePubs/Parents.pdf :: PDF file. No Child Left Behind Act (NCLB) and the Individuals with Disabilities Education Act (IDEA): What Parents of Students with Disabilities Need to Know and Do
• Parents of Bipolar Children :: http://www.bpkids.org/site/PageServer ::
• Partnership for Prescription Assistance :: http://www.pparx.org/ :: The Partnership for Prescription Assistance helps qualifying patients without prescription drug coverage get the medicines they need through the program that is right for them. Many will get their medications free or nearly free.
• Social Security Disability Insurance Program :: http://www.ssa.gov/pgm/links_disability.htm :: The Social Security disability insurance program (sometimes referred to as SSDI) pays benefits to you and certain family members if you worked long enough and paid Social Security taxes. Your adult child also may qualify for benefits on your earnings reco
• Southeastern Rett Syndrome Alliance :: http://www.serett.org/ :: Southeastern Rett Syndrome Alliance is a grassroots organization established to provide a network of information and emotional support for families and caregivers of Rett Syndrome children and adults; and to increase public awareness of Rett Syndrome.
• Special Knowledge :: http://www.specialknowledge.org/ :: The mission of Special Knowledge is to connect parents and caregivers of individuals with special needs to service providers that are skilled, compassionate and dedicated about working with them. Additionally, through a social networking utility, Specia
• Spina Bifida Association :: http://www.spinabifidaassociation.org/ ::
• Spinal Cord Injury Information Network :: http://www.spinalcord.uab.edu/show.asp?durki=19679 :: This website offers educational materials and information on services of the UAB Spinal Cord Injury Model System (UAB-SCIMS) along with links to national organizations, government agencies, commercial products, and educational resources related to spinal
• T.A.S.C. of UCP :: http://www.ucptasc.org :: Our Mission Statement: to provide individuals with disabilities, their families and/or advocates, and associated professionals access to assistive technology devices and services to increase independence at home, school, and work.
• TASH (Association for Persons with Severe Handicaps) :: http://www.tash.org/index.html :: TASH is an international grassroots leader in advancing inclusive communities through research, education and advocacy.
• The Amelia Center :: http://www.ameliacenter.org/ :: At The Amelia Center a compassionate and caring group of professional grief counselors and support staff provide counseling and support to:Parents and families grieving the death of a child; Children, teenagers, young adults (19-21), and their caregivers
• The Arc :: http://www.thearc.org/ :: National community-based organization advocating for and serving people with intellectual and developmental disabilities and their families; encompasses all ages and spectrums from autism, Down syndrome, Fragile X and more.
• The Arc of Shelby County :: www.thearcofshelby.org :: Provides programs and services for individuals with developmental disabilities and their families throughout their lifespan; monthly family support group and statewide sibling support group.
• Tourette Syndrome Association :: http://www.tsa-usa.org/ ::
• U. S. Department of Education Office of Special Education Programs (OSEP) :: http://www.ed.gov/about/offices/list/osers/osep/ :: The Office of Special Education Programs (OSEP) is dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21 by providing leadership and financial support to assist states and local districts.
• U.S. Department of Education :: http://www.ed.gov/index.jhtml ::
• United Cerebral Palsy :: http://www.ucp.org/ ::
• Wrightslaw :: http://www.wrightslaw.com/ :: Parents, educators, advocates, and attorneys come to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities.
• Your Medical Record Rights in Alabama :: http://www.hpi.georgetown.edu/privacy/stateguides/al/al.pdf :: Your Medical Record Rights in Alabama: A Guide to Consumer Rights under HIPAA produced by the HEALTH POLICY INSTITUTE of GEORGETOWN UNIVERSITY.

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